Student Resources

Disability Resources:

• The Boggs Center on Developmental Disabilities:
  The Boggs Center on Developmental Disabilities, Rutgers Robert Wood Johnson Medical School, Department. of Pediatrics, A University Center for Excellence in Developmental Disabilities, Education, Research, and Service.
  Deborah M. Spitalnik PhD, Executive Director, Professor of Pediatrics,  732-235-9300.
  Click on Resources and Links for national and state-specific (New Jersey) websites.
  

• AUCD - Association of University Centers on Disabilities: The Boggs Center is part of a network of centers on disabilities and is the only University Center of Excellence in Developmental Disabilities in the state of New Jersey. This link provides some background of the broader network with which the Boggs Center is associated.
• AUCD Trainee page
• The President’s Committee for People with Intellectual Disabilities: Provides some historical background and current context for disability rights on the federal level.
• American Academy of Family Physicians: Promotes family centered care. Search for articles on disabilities, conditions, diseases, disorders and Intellectual Disabilities.
• American Academy of Pediatrics
• American Association on Intellectual and Developmental Disabilities: Definition of Intellectual Disabilities.
• Autism Research Institute: Medical support video series.
• Medical Students and Allied Health Care Professionals  Perceptions Toward the Mentally Retarded Population (Article). Handler, E.G., Bhardwaj, A. & Jackson, D.S. (1994). Medical Students and Allied Health Care Professionals  Perceptions Toward the Mentally Retarded Population. Journal of Developmental and Physical Disabilities, 6(3), 291-297.
• Addressing the “New Morbidity” in Pediatrics Through Developmental Screening (Article)
• Brighter Tomorrows: Pediatrician and family education on Down Syndrome.

• Centers for Disease Control: National Center on Birth Defects and Developmental Disabilities.

  information about Autism Spectrum Disorder, information about developmental screening and monitoring, with free materials

• National Center of Medical Home Initiatives for Children with Special Needs. American Academy of Pediatrics

• National Dissemination Center for Children with Disabilities: NICHCY is a central source of information on disabilities in infants, toddlers, children, and youth; laws authorizing special education; and research-based information on effective educational practices. For Disability-Specific Fact Sheets, go to http://nichcy.org/disability/specific

• National Institutes of Health: This division of the U.S. Department of Health & Human Services focuses on medical information and research. Search box for articles and clinical trials.

• National Organization for Rare Disorders: Provides Information, news, research and organizations related to disabilities and rare disorders.

Family Centered Care, including articles:

• Family Centered Care
• Waisman Center
• Family Voices
• Family-Centered Care and the Pediatrician’s Role (Article)
• Helping Families Raise Children with Special Health Care Needs at Home (Article)
• Role of the Pediatrician in Family-Centered Early Intervention Services (Article)
• National Best Practice Guidelines for Informing Families of their Child’s Disability (Article)
• Identification and Evaluation of Children with Autism Spectrum Disorders (Article): Pediatrician’s guidelines for screening autism, Pediatrics, 2007.

Family Resources and Services:

• The Arc: The Arc is the world’s largest community based organization of and for people with intellectual and developmental disabilities.  The Arc is devoted to promoting and improving supports and services for all people with intellectual and developmental disabilities.
• Autism New Jersey: A nonprofit agency providing information and advocacy, services, family and professional education, and consultation.
• Autism Society of America
• Autism Speaks
• Blind Children’s Resource Center
• Council for Exceptional Children: The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving the educational success of individuals with disabilities and/or gifts and talents.
• Disability is Natural: For Person-First Language and Advocacy
• Laurent Clerc National Deaf Education Center
• National Association for Parents of Children with Visual Impairments (NAPVI)
• National Consortium of Deaf-Blindness (DB-Link)
• National Federation of the Blind
• National Institute on Deafness and Other Communication Disorders NIDCD Information Clearinghouse
• National Resources for Specific Disabilities: A directory of national groups and organizations that can serve as resources for parents and professionals seeking information and support about specific disabilities and conditions.
• New Jersey Department of Human Services (PDF): Division of Disability Services, resource guide, 2013. A comprehensive statewide directory of programs and services for individuals with disabilities in the state of New Jersey.
• Office of Special Education Programs (OSEP): Office of Special Education and Rehabilitative Services (OSERS), US Department of Education
• Parent to Parent, USA: Parent Support Networks
• Spina Bifida Association
• United Cerebral Palsy Associations, Inc.: United Cerebral Palsy (UCP) is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability.
• Wrightslaw: Special Education Law and Advocacy
  
  

Key words of interest:

• Adaptive recreation
• Early Intervention
• IDEA – Individuals with Disabilities Education Act
  
• Independent living
• Parent to parent support
• Parent advocacy
• Special Education
• Special healthcare needs
• Transition to adult health care
  

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