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Message from the Chief

 

Dear Patients and Families,

This website contains information which will begin your orientation to Cystic Fibrosis.  It will also introduce you to our Cystic Fibrosis Center at Robert Wood Johnson Medical School/UMDNJ and keep you up to date on what is going on at our center.  Last, it will orient you to Bristol Myers Squibb Children’s Hospital and Robert Wood Johnson University Hospital.  We realize the tremendous effect that a new diagnosis has on your family and we believe that a website such as this will serve as a starting point to help you and your family address the challenges posed by CF.  We also believe this website can be useful over the life span as CF presents challenges and opportunities at different stages.

Over the years we have had the privilege of helping many families and patients successfully cope with the challenges presented by CF.  Our goal in developing this website is to provide background information and resources to help you along that journey.  In early childhood, much of the care for your child will be provided by yourselves and your family in your home.  Later in life, the care is handed over to your adolescent or young adult and our patients and their support systems will be responsible for their own care.  We would like to serve as advisors, teachers and an extended support system for you and your family along the way.

This website will also be updated as new information and guidance becomes available.  Often times, in the anxiety over a visit to the hospital or the clinic, much of what is said is not clearly remembered once you are home.  We hope that this site, along written care plans you receive in clinic will answer your questions and give you helpful guidance.

This website and the education received from all members of our team and other professionals in the field will serve as a firm foundation for building a lasting and successful partnership in our mutual goal of helping your child or family member successfully cope with Cystic Fibrosis.  Our ultimate

 

mutual goal is to insure that your family member has a full, productive life. 

As always, feel free to call our office with any questions.  Our multidisciplinary team is here to provide education and support.

Pediatric Program can be reached at 732-235-7899

Adult Program can be reached at 732-235-7840. 

 

Sincerely,

 

Thomas F Scanlin, MD                                                                  Sabiha Hussain, MD

Director, Cystic Fibrosis Center                                                    Adult Program Director