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What is CF?

Creating a Medical Profile

Cystic Fibrosis can be a very demanding disease to manage and there is a lot to remember!  Often in CF, children and adults get involved with doctors from various disciplines, like Gastroenterology or Endocrinology.  Keeping track of medications, changes, appointments and events in your medical history can challenge even those of us with the best memory and organizational skills.  You are also asked similar questions time and time again, resulting in the need to repeat yourself. 


Many families have found that keeping a medical profile can be very helpful in keeping track of everything.  It can also be very helpful to your medical providers to review it for any changes, new medications, etc.  Medical profiles will also save you tremendous time when asked to recite all of your child's medications, medical history, etc.


We recommend you develop a medical profile and carry it with you to appointments, procedures, hospitalizations, etc.  There are so many ways to do this and so many formats that people find helpful.  Attached is one format that some of our families use.  Feel free to print this or download it and use it.


Click here to access an example of a comprehensive Medical Profile