Welcome to the Cystic Fibrosis Center

Our Mission

The mission of the RWJ Cystic Fibrosis Center is to be a world leader in cystic fibrosis care, education and research by using an interdisciplinary approach in:

• practicing family centered, evidenced-based clinical care across the life span
• developing common goals in partnership with patients and families to enhance quality of life
• providing quality professional education
• promoting innovative research

The CF Center at RWJMS-BMSCH at RWJUH is one of only 3 Level III CF centers is the state of NJ that is accredited by the national CF Foundation. The Adult CF center at RWJMS at RWJUH received accreditation by the National CF Foundation in 2007. The CF Center at RWJ cares for approximately 130 patients and their families.

CF is a chronic progressive life shortening disease, with multiple organ system involvement and requires a coordinated multidisciplinary approach to provide comprehensive care in order to improve outcomes. Due to the chronicity of the disease, there is a tremendous psychosocial and financial burden to the individual, family and society. Numerous studies show that patients who receive care in an accredited CF center have better outcomes. Our staff is abreast of new recommendations set forth by the CF Foundation and we update our management protocols to comply with these.

Our goal as a center is to continue to provide excellent state of the art comprehensive care to all patients so that no patient with cystic fibrosis will have to leave the state to receive appropriate care. In order to achieve this goal, it is necessary to have an interdisciplinary team, which includes:

• Physicians
• Nurse Practitioners, Clinic Nurse Coordinators
• Registered Nurses
• Respiratory Therapists
• Nutritionists
• Social Worker

Services Include:

• Comprehensive ambulatory and inpatient care
• Evaluation
• Testing
• Clinical Management
• Nutritional education and management
• Counseling, case management and advocacy
• Life long follow up care
• Comprehensive education programs for families, community providers and other health care professionals on the care of CF patients
• Services are provided both to the CF patient and his/her family as needed.

Outpatient Services Provided in Cooperation with BMSCH and RWJUH include:

• Sweat Testing
• Pulmonary Function Testing
• Diagnostic Imaging, including MRI, ultrasound and CT
• Bone Density Scans
• Oral Glucose Tolerance Testing
• Sputum Culture

Inpatient Care for pediatric and adolescent patients at BMSCH at RWJUH, for adult patients at RWJUH. Faculty and staff in the CF program follow patients both outpatient and inpatient. Center physicians provide 24 hour, 7 day per week care.